Journey with Confidence RV GPS App RV Trip Planner RV LIFE Campground Reviews RV Maintenance Take a Speed Test Free 7 Day Trial ×


Reply
 
Thread Tools Display Modes
 
Old 07-14-2022, 10:07 AM   #1
Mini-Skoolie
 
LoveandRage's Avatar
 
Join Date: Apr 2019
Location: Georgia
Posts: 62
Year: 2007
Coachwork: Midbus
Chassis: Chevy Express G3500
Engine: 6.0 V8
Rated Cap: 12+2WC
Cancer treatment

So my husband and I are traveling in two busses together and I am having significant health issues. It looks like Iím facing a cancer diagnosis. I was seen at a hospital ER and followed up with their transitional care clinic which mostly serves their local homeless population without regular doctors. The doctor I saw has said I have a textbook case of carcinoid syndrome (waiting on labs) and we need to stop traveling and find me a regular doctor to continue my care and coordinate further treatment (chemo, surgery, most likely).

My husband is resistant to stopping our travels and has asked me to reach out and find out how other travelers deal with such situations. Does anyone have any ideas for us? Iím really at a loss here.

LoveandRage is offline   Reply With Quote
Old 07-14-2022, 12:37 PM   #2
Bus Crazy
 
TheHubbardBus's Avatar
 
Join Date: Apr 2019
Location: Earth
Posts: 1,889
Year: 2004
Coachwork: IC
Chassis: CE300
Engine: t444e
Rated Cap: 24
Best wishes and much love to you and your hubby.

If it were me (and it's not, so what I say doesn't really matter), I'd make my initial appointment with the specialist, ask them if travelling is reasonable/practical/doable, and then go from there.
__________________
My first wife was 'tarded. She's a pilot now.
TheHubbardBus is offline   Reply With Quote
Old 07-14-2022, 03:26 PM   #3
Mini-Skoolie
 
LoveandRage's Avatar
 
Join Date: Apr 2019
Location: Georgia
Posts: 62
Year: 2007
Coachwork: Midbus
Chassis: Chevy Express G3500
Engine: 6.0 V8
Rated Cap: 12+2WC
To clarify, We are really hoping to hear from other full time travelers who have faced a major medical issue while traveling. Clearly, I can’t start chemo in one location and just get it wherever I happen to be like a prescription. And I’m already at the point where moving every one to two weeks is too much. But I have heard that sometimes hospitals have parking for RVs for people who travel to that location for a specific treatment. For example. So, Anyone with experience of a major illness or medical issue on the road that wants to weigh in on their experience would be super helpful to us right now.
__________________
Build Thread: https://www.skoolie.net/forums/f27/the-great-ok-bus-part-deux-35142.html
LoveandRage is offline   Reply With Quote
Old 07-14-2022, 03:48 PM   #4
New Member
 
Join Date: Jun 2016
Posts: 5
Not travel related but...

When it comes to cancer, I would get to MD Anderson in Houston.

You are never "waiting for labs". They get everything done fast.

Wish you all the best.
jamesdc1 is offline   Reply With Quote
Old 07-14-2022, 09:46 PM   #5
Mini-Skoolie
 
LoveandRage's Avatar
 
Join Date: Apr 2019
Location: Georgia
Posts: 62
Year: 2007
Coachwork: Midbus
Chassis: Chevy Express G3500
Engine: 6.0 V8
Rated Cap: 12+2WC
Thanks James. Interesting idea. They appear to have a neuroendocrine department. I will look into it.
__________________
Build Thread: https://www.skoolie.net/forums/f27/the-great-ok-bus-part-deux-35142.html
LoveandRage is offline   Reply With Quote
Old 07-15-2022, 08:48 AM   #6
Bus Crazy
 
Drew Bru's Avatar
 
Join Date: May 2016
Location: Grayson County, VA
Posts: 1,354
Year: 1996
Coachwork: Amtran
Chassis: International
Engine: DT466
Rated Cap: 65
First of all, I hope this is just a scare and that what you're dealing with is not a really serious issue. I've not had medical issues while traveling, but I can certainly relate to the problems of moving every couple weeks. A nice thing about being nomadic is that maybe you can find a really good medical team (like Mayo Clinic or something) and relocate near there instead of just hoping you local hospital knows what the hell they're doing.

If the tests show that you have this Carcinoid Syndrome it seems like a real bear to treat. It doesn't seem feasible to be a nomad and deal with cancer treatments. You'll need support and stability. I wouldn't even consider traveling, but would find family I could stay with or find a place to long-term park that was near a good cancer facility. Trying to travel during a cancer treatment regimen is insane, IMO.
__________________
Our Build: https://dazzlingbluebus.wordpress.com/
Drew Bru is offline   Reply With Quote
Old 07-16-2022, 12:19 AM   #7
Skoolie
 
Join Date: Feb 2022
Location: Midwest
Posts: 196
I've not done this as I've not yet gone nomad, but I am a firm believer in having a plan for all eventualities. For the "medical issue requires a long term stay somewhere" problem the plan would be to get a small piece of land within a reasonable driving distance that I can park the bus on, and continue living in the bus. Ideally, I'd look for a place with a derelict mobile home that the owner is selling as a place that had a mobile will have water and sewer. Power might be a problem, but if the bus was self-sufficient power-wise then all you'd need is a water in/water out setup. Being in a bus, you have the advantage of being able to go where the best treatment options for your particular problem is. No idea on your financial situation, but this plan might tie up quite a large chunk of cash, but when you've resolved your medical issue the land can be resold to get the money back. Or, you might just decide to keep it and use the place as a home base. Good luck.
Veloc is online now   Reply With Quote
Old 08-02-2022, 05:25 AM   #8
Mini-Skoolie
 
Join Date: May 2022
Location: Yooper
Posts: 22
Year: 2007
Coachwork: IC
Chassis: CE200
Engine: VT-365
Rated Cap: 29760 GVWR
My wife and I bought our bus for the sole purpose of getting her to Dana Farber in Boston because most doctors suck. We can't afford to actually pay rent and we have 3 dogs, and so we thought this would be a reasonable alternative. I will say that this entire adventure has been stress filled and not what I would consider a healing environment. On that note, our conversion isn't complete and we are dealing with other mechanical issues, so I am sure that has played a part in my own sense of overwhelming duty to get her to appointments without facing a major catastrophe.

If you don't have a fully converted bus, have a place with full hookups to park, or the funds to stay in a room for a couple of nights every two weeks, then I wouldn't try it. I will also encourage my significant other to chime in.
Samarath is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off


» Featured Campgrounds

Reviews provided by

Powered by vBadvanced CMPS v3.2.3

All times are GMT -5. The time now is 02:03 AM.


Powered by vBulletin® Version 3.8.8 Beta 4
Copyright ©2000 - 2022, vBulletin Solutions, Inc.